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2.
Health Promot Int ; 38(4)2023 Aug 01.
Artigo em Inglês | MEDLINE | ID: mdl-35022714

RESUMO

On 30 January 2020, the disease covid-19 was declared by the World Health Organization to be an international threat to human health and on 11 March 2020, the outbreak was declared a pandemic. The aim of this study was to analyse policy strategies developed by the five Nordic countries during the first 3 months of the pandemic from a health promotion perspective in order to identify Nordic responses to the crisis. Although the Nordic countries have a long tradition of co-operation as well as similar social welfare policies and legislation, each country developed their own strategies towards the crisis. The strategies identified were analysed from a health promotion perspective emanating from five principles: intersectorality, sustainability, equity, empowerment and a lifecourse perspective. Denmark, Finland and Norway had lockdowns to varying degrees, whereas Sweden and Iceland had no lockdowns. Iceland implemented a test and tracking strategy from the very beginning. All countries based their recommendations and restrictions on appeals to solidarity and trust in institutions and fellow citizens. The analysis showed that the strategies in all countries could be related to health promotion principles with some differences between the countries especially regarding equity and sustainability. The Nordic governments took responsibility for protecting their citizens by developing policy strategies based on restrictions and recommendations congruent with the principles of health promotion. The findings also identified issues that will pose challenges for future pandemic strategies.


Assuntos
COVID-19 , Humanos , COVID-19/epidemiologia , COVID-19/prevenção & controle , Controle de Doenças Transmissíveis , Países Escandinavos e Nórdicos/epidemiologia , Finlândia , Promoção da Saúde , Política Pública
3.
Scand J Caring Sci ; 35(3): 833-843, 2021 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-32781485

RESUMO

BACKGROUND: There are difficulties in clinical assessment of patients' health, and there is a need for evaluating instruments that measures self-rated health over time and that are based on the patient's own experiences of their health situation. AIM: To describe the trajectory of self-rated health given in a retrospective health-line and its correspondence with the ratings of health given at six different time points during 2 years following a first breast cancer surgery. DESIGNS AND METHODS: An explorative prospective cohort study presented according to the STROBE guideline. At six time points, 459 women (26-63 years) completed assessments of self-rated health during 2 years following a first breast cancer surgery. Subsequently, the women retrospectively rated health month by month over the two years by means of a health-line. The women were included consecutively in 2007-2009, last data collection was performed in 2012. Statistical analyses were used to compare the health-line with previous ratings. RESULTS: Most women (74-88%) rated their health as good, very good or excellent at all six time points. Health-line ratings were somewhat lower than the ratings made at the actual time-point; however, the illustrated trajectories back in time followed the same patterns as the women had reported during the two years. The lowest ratings of self-rated health were reported at four months after surgery. The retrospective illustrations varied greatly, and poorer health was reported by women undergoing chemotherapy, with lower education and who reported more life events. CONCLUSIONS: Even if the retrospective ratings by the health-line were somewhat lower than the ratings at the actual time-point, the health-line captures the health trajectory. The individual graphic illustration by means of a health-line may serve as a basis for assessment and support patient health narratives. The findings indicate that life event, lower education and chemotherapy influence concurrent and retrospective self-assessment of health.


Assuntos
Neoplasias da Mama , Neoplasias da Mama/cirurgia , Feminino , Humanos , Estudos Prospectivos , Estudos Retrospectivos , Autoavaliação (Psicologia) , Inquéritos e Questionários
4.
Health Promot Int ; 32(1): 35-43, 2017 02 01.
Artigo em Inglês | MEDLINE | ID: mdl-28180255

RESUMO

Summary: Holistic understanding of health is one of the key principles of health promotion indicating that the health status of individuals and populations is determined by a variety of environmental, economic, social and personal factors. Traditionally, research focus has been on school-aged children and school-based interventions and less on pre-school children and their families' engagement in promoting health in everyday life. The aim of the present study was to explore factors that parents of pre-school children in the Nordic countries experienced as influencing health lifestyles in their children's everyday lives. Semi-structured interviews were conducted with 25 parents of pre-school children in the five Nordic countries. Qualitative content analysis was used to analyse the data. The parents identified themselves as the primary shapers of their children's lifestyles and described influencing factors related to themselves as well as to their immediate surroundings and the larger society. Attaining a health lifestyle in everyday life of Nordic parents with pre-school children appeared to be all about the 'management of time when attempting to live up to expectations'. Pre-school children's lifestyles are to a great extent intertwined with their parent's lifestyles and should be approached, both in research and practice, accordingly. Parents of pre-school children in the Nordic countries appear to be living their everyday lives straining to adapt to norms prevailing in society and may need encouragement and support in managing time in order to promote health lifestyles for themselves and their children.


Assuntos
Saúde da Criança , Estilo de Vida Saudável , Pais , Adulto , Atitude Frente a Saúde , Pré-Escolar , Feminino , Humanos , Masculino , Pesquisa Qualitativa , Países Escandinavos e Nórdicos , Escolas Maternais , Fatores de Tempo
5.
Scand J Public Health ; 43(16 Suppl): 51-6, 2015 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-26311799

RESUMO

The Nordic Health Promotion Research Network (NHPRN) was established in 2007 at the Nordic School of Public Health (NHV). This article aims to describe the foundation of the NHPRN, the development and the present status of the work of NHPRN. The NHPRN consists of about 50 senior and junior researchers from all Nordic countries. It is a working network that aims to develop the theoretical understanding of health promotion, to create research cooperation in health promotion from a Nordic perspective and to extend the scope of health promotion through education. Network members meet biannually to discuss and further develop research within the field and are also responsible for the Nordic conference on Health Promotion, organized every 3 years. The NHV hosted the network between 2007 and 2014; and the World Health Organisation (WHO) will assume this role in 2015.


Assuntos
Pesquisa Biomédica/história , Promoção da Saúde/história , Faculdades de Saúde Pública/história , Pesquisa Biomédica/organização & administração , Promoção da Saúde/organização & administração , História do Século XXI , Países Escandinavos e Nórdicos , Faculdades de Saúde Pública/organização & administração
7.
Scand J Public Health ; 42(15 Suppl): 41-51, 2014 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-25416573

RESUMO

BACKGROUND: Nordic children's health has declined. Studies show that parents' engagement in children's leisure-time activities might provide beneficial health outcomes for children. AIM: The aim of the present study was to examine the association between Swedish parents' activities together with their children, the parents' experiences of time pressure and their children's health. METHODS: Data of 1461 Swedish children aged 2-17 years old that were collected in the NordChild study of 2011 were used. We analyzed physical health, diseases and disabilities, psychosomatic health and well-being, and the parents' experiences of time pressure; and we calculated the associations between parental activity together with the child and health indicators. RESULTS: Activities that were significantly and positively associated with children's health at ages 2-17 years of age were: playing and playing games; going to the cinema, theatre, and sporting events; reading books; playing musical instruments/singing; sports activities; watching TV/video/DVD. Playing video games or computer games, driving child to activities and going for walks were significantly and positively associated at age groups 7-12 years and 13-17 years. Activities that were negatively associated with health were: surfing/blogging on the Internet, going shopping and doing homework. Parents who were not experiencing time pressures had a higher level of activity together with their children. The parental experience of time pressure was associated with work time, with less homework activity and more symptoms in children. CONCLUSIONS: The family and home are important settings for the development of children's health we found eight parental activities together with their children that promoted the children's health parents' working time and their time pressure experiences affected their activities with their children there is a need for an increased focus on parental activities that are positively associated with children's health.


Assuntos
Proteção da Criança/estatística & dados numéricos , Atividades de Lazer/psicologia , Relações Pais-Filho , Adolescente , Criança , Pré-Escolar , Estudos Transversais , Feminino , Humanos , Masculino , Suécia
8.
Scand J Occup Ther ; 21 Suppl 1: 108-15, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-25116752

RESUMO

OBJECTIVE: This study was undertaken to explore the views of occupational therapists concerning their competences in health promotion, and their perceptions of how they apply these competences in their daily work. The study also elicited their views on the contributions that occupational therapists could make to health promotion if given the opportunity. METHODS: Data were collected in five focus-group discussions with 24 occupational therapists. These discussions were tape recorded and transcribed verbatim; data were analysed using qualitative content analysis. RESULTS: The main findings are that the informants took an individualized salutogenic approach in their work and rarely engaged in health promotion on a systemic or societal level. They believed that their patients and collaborating partners, as well as public officials, remained unaware of their competences in health promotion. CONCLUSIONS: The findings of this study could enrich the discussion among occupational therapists on how they could make a more significant contribution to health promotion on a broader level.

9.
J Allergy (Cairo) ; 2014: 898965, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-24817894

RESUMO

Some patients with an asthma diagnosis have a poor controlled asthma. One explanation may be an incorrect diagnosis. Aim. The aim of the study was to diagnose and classify patients with non-infectious lower respiratory tract problems in primary health care using internationally applied diagnostic criteria and diagnostic tests. Patients and Methods. New adult patients visiting a primary health care centre due to lower airway problems were included. The diagnostic tests included FEV1, FVC, PEF, two questionnaires, methacholine test, and skin prick test. Results. The patients (n = 43) could be divided into four groups: asthma (28%), asthma-like disorder (44%), idiopathic cough (12%), and a nonreversible bronchial obstructive group (16%). The asthma and asthma-like groups showed similar patterns of airway symptoms and trigger factors, not significantly separated by a special questionnaire. Phlegm, heavy breathing, chest pressure/pain, cough, and wheezing were the most common symptoms. Physical exercise and scents were the dominating trigger factors. Conclusions. Nonobstructive asthma-like symptoms seem to be as common as bronchial asthma in primary health care. Due to the similarities in symptoms and trigger factors the study supports the hypothesis that asthma and nonobstructive asthma-like disorders are integrated in the same "asthma syndrome," including different mechanisms, not only bronchial obstruction.

10.
Scand J Occup Ther ; 21(2): 82-9, 2014 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-24467479

RESUMO

OBJECTIVE: This study was undertaken to explore the views of occupational therapists concerning their competences in health promotion, and their perceptions of how they apply these competences in their daily work. The study also elicited their views on the contributions that occupational therapists could make to health promotion if given the opportunity. METHODS: Data were collected in five focus-group discussions with 24 occupational therapists. These discussions were tape recorded and transcribed verbatim; data were analysed using qualitative content analysis. RESULTS: The main findings are that the informants took an individualized salutogenic approach in their work and rarely engaged in health promotion on a systemic or societal level. They believed that their patients and collaborating partners, as well as public officials, remained unaware of their competences in health promotion. CONCLUSIONS: The findings of this study could enrich the discussion among occupational therapists on how they could make a more significant contribution to health promotion on a broader level.


Assuntos
Atitude do Pessoal de Saúde , Conhecimentos, Atitudes e Prática em Saúde , Promoção da Saúde , Terapia Ocupacional , Competência Clínica , Feminino , Grupos Focais , Humanos , Masculino , Pesquisa Qualitativa , Autoeficácia
11.
Scand J Caring Sci ; 28(3): 552-63, 2014 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-24117615

RESUMO

BACKGROUND: Three cross-sectional time series studies, randomised and stratified for age and gender, were performed on children aged 2-17, studying their health and well-being. The studies were performed in the Nordic countries in 1984, 1996 and 2011. Long-term illness (LTI) and psychosomatic complaints (PSC) increased during the period. Data were collected from mailed questionnaires. METHODS: Data of 1461 Swedish children from 2011 were used and compared with data from 1984 and 1996. Relationships between the health indicators (the absence of LTI, 13 diagnoses, the absence of PSC, six symptoms, six items of well-being) and 12 activities were analysed. RESULTS: A total of 83.2% of the children were healthy and 16.8% had at least one LTI, boys 19.1% and girls 14.5%. PSC increased from 18.6% in 1996 to 23.1% in 2011. The distribution was higher in girls. Girls were more active than boys during leisure time. 'Reading books', 'visiting friends', 'listening to music' and 'activity in organisations' were related to an absence of PSC, LTI and well-being. 'Surfing/blogging on the Internet' was negatively related to LTI, PSC and well-being. Multiple regression showed that that 'visits or is visited by friends' was related with a low probability for LTI and also with a high probability for well-being. In the logistic regression analyses, the following variables were seen as promoting health most: 'visits or is visited by friends' and 'is active in organizations' for children aged 2-17 years, especially for boys and well-being. CONCLUSIONS: The health of Swedish children declined between 1984 and 2011. Positive relationships were found between some activities and health as well as other activities related to ill health. The results suggest an increased focus on the activities that have positive relationships with health in order to promote health among children.


Assuntos
Nível de Saúde , Recreação , Adolescente , Criança , Pré-Escolar , Estudos Transversais , Feminino , Humanos , Masculino , Suécia
12.
J Clin Nurs ; 22(7-8): 996-1004, 2013 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-23311685

RESUMO

AIM AND OBJECTIVES: To explore the participation and responses of children to an asthma education programme that was developed with the aid of children with asthma. In a larger perspective, the aim was to understand how educational approaches can be designed to help children learn to live and cope with asthma. BACKGROUND: A literature search showed that programmes where children participate in the development of educational materials or programmes are lacking. DESIGN: An exploratory descriptive design was chosen to get an in-depth understanding of the communication and collaboration between children and healthcare personnel. METHODS: Data were collected through observations, tape recordings of the conversations and notes of the interactions between the children and the healthcare personnel and analysed by content analysis. RESULTS: The significance of the asthma education programme emerged in four themes: (i) children are learning from each other: in a positive learning climate, the children were able to express emotional themes that they may not have communicated before; (ii) children are learning through an interaction with the educational material: the children discussed stories and pictures in a fellow interplay: when one child expressed something, another child would recognise it and continue the story; (iii) children are learning from their interaction with healthcare personnel and vice versa: adjusting the vocabulary according to the children's experiences, they were met on their level of understanding; and (iv) children can express and discuss their understanding of asthma. CONCLUSIONS: The unique aspect about this programme is that it emanates from children's perspectives. The children were actively involved and learnt from each other's shared knowledge and experiences, which is a good source of meaningful learning and empowering processes. RELEVANCE TO CLINICAL PRACTICE: Future educational approaches should use children's perspectives in a manner in which their questions, thoughts and daily challenges are emphasised.


Assuntos
Asma/psicologia , Educação de Pacientes como Assunto/métodos , Participação do Paciente , Antiasmáticos/uso terapêutico , Asma/tratamento farmacológico , Asma/terapia , Criança , Humanos , Aprendizagem
13.
Scand J Caring Sci ; 27(3): 724-32, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-23066975

RESUMO

Educational interventions are generally poorly described and the active elements underlying several successful interventions have insufficient descriptions. The aim of the present study was to analyse and discuss the theoretical principles according to which a standardised health education programme originating from a Norwegian Learning and Mastery Centre was performed, and how these principles influence practice at a local Learning and Mastery Centre. A descriptive embedded multiple-case study, with two cases and three defined units, was chosen for the analysis. Data consisted of observations, documents and relevant theoretical literature. The findings indicate that both cases were organised and practised in a scholastic way. The professionals paid little attention to the participants' beliefs and ideas as part of the learning process. Professional knowledge and user knowledge did not appear to be considered to be of equal value. The professionals did not stress reflection as a main prerequisite for learning, therefore participants' learning potential was not utilised. Attention must be paid to improving the professional's educational competence. The educational competence of the professionals should not only include educational techniques but also knowledge about how to facilitate learning processes and an understanding of the concept of health literacy. The theoretical foundations of the Learning and Mastery Centre, as well as its learning philosophy and approach must be stated more explicitly. To benefit from a Learning and Mastery course, the participants should have a minimum understanding about their medical conditions before attending the course, and the professionals should have knowledge about the participants' pre-knowledge.


Assuntos
Educação em Saúde/organização & administração , Educação em Saúde/normas , Noruega
14.
Clin Respir J ; 7(2): 176-82, 2013 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-22621613

RESUMO

BACKGROUND: Many patients present with a mixture of respiratory problems such as shortness of breath, heavy breathing, coughing and odour intolerance. If these patients are diagnosed as asthma, it might sometimes be a false diagnosis. Concepts such as sensory hyperreactivity, hyperventilation, asthma-like symptoms, odour intolerance and dysfunctional breathing are used to refer to these patients. Non-respiratory symptoms such as headache, fatigue and bloating are sometimes also part of the clinical picture. Our aim was to use factor analysis to increase our understanding of breathing-related symptoms in a general-population frame. METHODS: A respiratory questionnaire was answered by 10 108 subjects in a general-population sample. Items aiming to identify individuals with breathing-related symptoms and asthma were included. We used factor analysis with Varimax rotation to extract discriminatory components (i.e. groups of symptoms), based on the questionnaire items. The aim was to find groups of items (factors) as distinct as possible, still allowing overlap and showing the importance of each item in the separated factor. RESULTS: Five distinct factors were identified in the factor analysis, representing dysfunctional breathing, odour intolerance, asthma, bronchitis and a group with mixed symptoms, respectively. These five factors explained 55% of the variance. CONCLUSIONS: Based on our findings, we conclude that non-asthmatic breathing-related symptoms may be separated into at least two categories in a general population, odour intolerance and dysfunctional breathing. These two categories seem to be two distinct groups of subjects with breathing-related symptoms and may represent different clinical entities separated from asthma and bronchitis.


Assuntos
Asma/diagnóstico , Hiper-Reatividade Brônquica/diagnóstico , Sensibilidade Química Múltipla/diagnóstico , Odorantes , Adulto , Asma/epidemiologia , Asma/fisiopatologia , Hiper-Reatividade Brônquica/epidemiologia , Hiper-Reatividade Brônquica/fisiopatologia , Diagnóstico Diferencial , Feminino , Humanos , Hiperventilação/diagnóstico , Hiperventilação/epidemiologia , Hiperventilação/fisiopatologia , Masculino , Pessoa de Meia-Idade , Sensibilidade Química Múltipla/epidemiologia , Sensibilidade Química Múltipla/fisiopatologia , Qualidade de Vida , Inquéritos e Questionários , Suécia/epidemiologia
15.
Glob Health Action ; 5: 1-11, 2012 08 16.
Artigo em Inglês | MEDLINE | ID: mdl-22902052

RESUMO

BACKGROUND: Tuberculosis rates in the world remain high, especially in low- and middle-income countries. International tuberculosis (TB) policy generally recommends the use of directly observed therapy (DOT) to ensure treatment adherence. OBJECTIVE: This article examines a change in TB treatment support that occurred in 2005 in South Africa, from DOT to the enhanced TB adherence programme (ETA). DESIGN: Seven key individuals representing academics, policy makers and service providers involved in the development of the ETA programme or knowledgeable about the issue were purposively sampled and interviewed, and participant observation was conducted at ETA programme steering group meetings. Qualitative content analysis was used to analyse the data, drawing on the Kingdon model of agenda setting. This model suggests that three independent streams - problem, policy and politics - come together at a certain point, often facilitated by policy entrepreneurs, to provide an opportunity for an issue to enter the policy agenda. RESULTS: The results suggest the empowerment-oriented programme emerged through the presence of policy entrepreneurs with access to resources. Policy entrepreneurs were influenced by a number of simultaneously occurring challenges including problems within the existing programme; a perceived mismatch between patient needs and the existing TB treatment model; and the TB-HIV co-epidemic. Policy entrepreneurs saw the ART approach as a possible solution to these challenges. CONCLUSIONS: The Kingdon model contributed to describing the process of policy change. Research evidence seemed to influence this change diffusely, through the interaction of policy entrepreneurs and academics.


Assuntos
Atitude do Pessoal de Saúde , Infecções por HIV/tratamento farmacológico , Adesão à Medicação/psicologia , Poder Psicológico , Tuberculose/tratamento farmacológico , Fármacos Anti-HIV/administração & dosagem , Fármacos Anti-HIV/uso terapêutico , Antituberculosos/administração & dosagem , Antituberculosos/uso terapêutico , Comorbidade/tendências , Terapia Diretamente Observada/psicologia , Terapia Diretamente Observada/tendências , Infecções por HIV/epidemiologia , Política de Saúde/tendências , Humanos , Entrevistas como Assunto , Adesão à Medicação/estatística & dados numéricos , Pesquisa Qualitativa , Autoadministração/psicologia , Autoadministração/tendências , África do Sul/epidemiologia , Tuberculose/epidemiologia
16.
Health Res Policy Syst ; 10: 8, 2012 Mar 12.
Artigo em Inglês | MEDLINE | ID: mdl-22410185

RESUMO

BACKGROUND: Over the past half decade South Africa has been developing, implementing and redeveloping its Lay Health Worker (LHW) policies. Research during this period has highlighted challenges with LHW programme implementation. These challenges have included an increased burden of care for female LHWs. The aim of this study was to explore contemporary LHW policy development processes and the extent to which issues of gender are taken up within this process. METHODS: The study adopted a qualitative approach to exploring policy development from the perspective of policy actors. Eleven policy actors (policy makers and policy commentators) were interviewed individually. Data from the interviews were analysed thematically. RESULTS: Considerations of LHW working conditions drove policy redevelopment. From the interviews it seems that gender as an issue never reached the policy making agenda. Although there was strong recognition that the working conditions of LHWs needed to be improved, poor working conditions were not necessarily seen as a gender concern. Our data suggests that in the process of defining the problem which the redeveloped policy had to address, gender was not included. There was no group or body who brought the issue of gender to the attention of policy developers. As such the issue of gender never entered the policy debates. These debates focused on whether it was appropriate to have LHWs, what LHW programme model should be adopted and whether or not LHWs should be incorporated into the formal health system. CONCLUSION: LHW policy redevelopment focused on resolving issues of LHW working conditions through an active process involving many actors and strong debates. Within this process the issue of gender had no champion and never reached the LHW policy agenda. Future research may consider how to incorporate the voices of ordinary women into the policy making process.


Assuntos
Agentes Comunitários de Saúde/legislação & jurisprudência , Política de Saúde , Formulação de Políticas , Adulto , Agentes Comunitários de Saúde/educação , Agentes Comunitários de Saúde/provisão & distribuição , Emprego , Feminino , Humanos , Relações Interpessoais , Pesquisa Qualitativa , África do Sul , Adulto Jovem
17.
BMC Health Serv Res ; 11: 275, 2011 Oct 17.
Artigo em Inglês | MEDLINE | ID: mdl-22004533

RESUMO

BACKGROUND: Tuberculosis (TB) is a major contributor to the global burden of disease. In many settings, including South Africa, treatment outcomes remain poor. In contrast, many antiretroviral treatment (ART) programmes are achieving high levels of adherence and good outcomes. The ART programme model for maintaining treatment adherence may therefore hold promise for TB treatment. Changing treatment models, however, requires an assessment of how staff receive the new model, as they are responsible for programme implementation. Using the normalization process model as an analytic framework, this paper aims to explore staff perceptions of a new TB treatment programme modelled on the ART treatment programme. METHODS: A qualitative approach was used. Interviews and focus group discussions were conducted with clinic staff from five intervention clinics. Data were analysed initially using qualitative content analysis. The resulting categories were then organised under the constructs of the normalization process model. RESULTS: Staff recounted a number of challenges with implementing the programme. Interviews and focus group discussions identified factors relating to the main categories of the normalization process model. The key issues hindering the normalisation of the programme within clinics related to the interactional workability, relational integration and skill-set workability constructs of the model. These included hierarchical relationships, teamwork, training needs and insufficient internalisation by staff of the empowerment approach included in the programme. Logistical and management issues also impacted negatively on the normalization of the programme at the clinics. CONCLUSION: The normalization process model assisted in categorising the challenges experienced during implementation of the intervention. The results suggest that issues remain that need to be resolved before the programme is implemented more widely. Considerable work is needed in order to embed the intervention in routine clinic practice.


Assuntos
Atitude do Pessoal de Saúde , Corpo Clínico/psicologia , Desenvolvimento de Programas , Tuberculose Pulmonar/terapia , Feminino , Grupos Focais , Pesquisa sobre Serviços de Saúde , Humanos , Masculino , Corpo Clínico/organização & administração , Adesão à Medicação/estatística & dados numéricos , Modelos Organizacionais , Avaliação de Programas e Projetos de Saúde , Pesquisa Qualitativa , África do Sul
18.
J Pediatr Nurs ; 26(4): 295-303, 2011 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-21726779

RESUMO

The aim of the study was to explore children's experiences of asthma to tailor a learning program based on their perspectives. Fifteen children (7-10 years) were interviewed, and they narrated the meaning behind their drawings; a phenomenological hermeneutical approach was used in the analysis. The findings are described in two themes with five subthemes: fear of exacerbation (bodily sensations, frightening experiences, and loss of control) and fear of being ostracized (experiences of being excluded and dilemma of keeping the asthma secret or being open about it). Drawings are a good tool for initiating a dialogue with children.


Assuntos
Asma/psicologia , Medo/psicologia , Isolamento Social/psicologia , Adaptação Psicológica , Arte , Asma/fisiopatologia , Criança , Feminino , Humanos , Masculino , Pesquisa Qualitativa , Estresse Psicológico
19.
Disabil Rehabil ; 33(25-26): 2425-33, 2011.
Artigo em Inglês | MEDLINE | ID: mdl-21524187

RESUMO

PURPOSE: To test responsiveness and sensitivity to change of the Stroke Specific Quality of Life Scale Danish version (SSQOL-DK) scores in patients following stroke. METHODS: A follow-up study of 150 patients with first-ever stroke was used. Questionnaires on quality of life, fatigue, depression, and functional level were completed. Direction of change was categorised as deterioration, no change or improvement. Proportion of concordant classification with external criteria was assessed. Associations between differences in SSQOL-DK domains and the other instruments were estimated using Spearman's rank order correlation coefficients. Paired t-test was used to assess change in the SSQOL-DK domains in patients affected in that domain. Effect size and standardised response mean (SRM) were used to express domain responsiveness. RESULTS: SSQOL-DK classified concordantly in 42.2 to 58.1%, and misclassified from zero to 31.3%. Changes in SSQOL-DK and in the corresponding measures correlated from (r(s)) 0.08 to -0.58. Fatigue and domain energy in SSQOL-DK were negatively correlated. Effect size ranged from -0.03 to -0.53, SRM from -0.02 to -0.56 reflecting mild-to-moderate responsiveness in eight out of 12 domains. CONCLUSION: SSQOL-DK is mildly to moderately responsive and sensitive and can be used for descriptive purposes over time in groups of patients with mild stroke.


Assuntos
Indicadores Básicos de Saúde , Qualidade de Vida , Reabilitação do Acidente Vascular Cerebral , Adulto , Idoso , Idoso de 80 Anos ou mais , Dinamarca , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
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